defeatHIV Events: The Word on an HIV Cure

Posted on December 23, 2013 by defeatHIV

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THE WORD ON AN HIV CURE

Tuesday, January 14, 2104
7 to 8:30 PM

MIller Community Center
330 19th Avenue East
(intersection of Thomas and 19th Ave)
Seattle, WA 98112

FOR MORE INFO: 206-667-5810

Facebook Event Page:  THE WORD ON AN HIV CURE in Seattle

The defeatHIV Community Advisory Board (CAB) invites you to join us on Tuesday, January 14th at our next community event; “THE WORD ON AN HIV CURE.”

This evening will be a great way to meet defeatHIV, the scientists & the community members who have come together to support the research into an HIV cure conducted in Seattle at Fred Hutchinson Cancer Research Center.

The event is free, no registration required.  We will have free food and some entertainment to start us of on a good foot.

The two men who lead defeatHIV, Drs. Hans-Peter Kiem and Keith Jerome, will be on hand to reveal their current research and answer your questions on how they plan to create HIV-resistant cells and to ‘snip’ HIV DNA from its hiding places throughout the body.

This research attempts to build on the unique case of Timothy Ray Brown, the first person to be cured of HIV, but to make his HIV cure accessible to many more people using some nontraditional methods.

In addition, we will begin a community conversation around HIV cure research and the necessary roles that only community members could fulfill, which promises to be a discussion you will want to listen to, if not add your own voice to the mix.

What is there for me to talk about in HIV cure research
Some—and by no means all– of the questions we will want to hear your thoughts on during our discussion:

  • How much risk is too much? Some studies offer no chance for direct medical benefit (proof of concept). Others have higher risks.
  • Where do we draw the line in terms of too much risk?
  • How do we accurately speak about cure? Basic concepts are difficult to describe in plain language
  • What does ‘cured’ mean to you, and how can we know it? Proving someone is “cured” could be quite difficult – need for very long follow-up
  • What role does altruism play in deciding to join a cure research study? Some studies must be done in very healthy HIV-positive people
  • Should we even use the word ‘cure’? Recruitment must be ethical and must not overemphasize benefits (even inadvertently). Use the “c”word carefully.
  • At what cost?  A cure could be quite expensive
  • Will anyone be left out? What can we do to ensure this isn’t a future reality? A cure might only work for some people
  • How do we begin to dismantle the media hype or years of myths and false beliefs around a cure for HIV?
  • What effect does hearing about HIV cure research have on decisions around preventing HIV infection?
  • Outside of clinical trials, how else might I get involved?

If we are ever to see a cure for HIV achieved in our lifetimes, we will need every one of us to play a part.

As a group of people from various communities around Seattle, we have gathered to support this local work towards a cure. We are convinced that community voices as educators and advocates are needed now at the start of this journey to ensure that whatever cure may come is accessible to everyone.

Please join us on this journey.

We look forward to seeing you on January 14th.